The double-edged sword AUTISM Battle!! Online
Many overwhelmed moms try to find a community online when their kids are diagnosed with autism, as they don't get big support nearby. Most of them describe their family's autistic journey as a double-edged sword. As parents, we think the Autistic vitriol may subside when opened up on social platforms, but the reality is the opposite. The main sufferers are the parents as they are bullied in silence.
In the social media era, parents universally grapple with problems of oversharing information about their children. Too many ‘martyr parent’ groups use their children for sympathy. The posts from parents whose children have been diagnosed with Autism and other neurological conditions, could be fodder for the most embarrassing moment in future and regret when the kid being posted about becomes a grown-up.
Amanda Seigler the executive director of the U.S. branch of Autistic Inclusive Meets, has expressed her opinion towards a phrase -"There’s this tragic story out there mentioning that Autism is a fate graver than death". She denies it entirely, as some parents with autistic children share excessively personal photos.
On the contrary, Autistic children hate posts like these. The existence of such columns spotlights an unpleasant reality. Some parents choose to vent their sentiments in public panels, and they can be defamed for it.
Parents or anyone is forbidden to share the privacy clips of autistic children. Therefore the only voice the society is supposed to listen to is that of autistic grown-ups who claim to articulate for the entire spectrum.
In the autism society, 'Nothing about us without us,’ indicating any talk about autistic people should be led by autistic people only. It makes sense, but it’s not the end of the whole story. This applies fairly fit parenting too ... If the topic is parenting an autistic kid, what better voices than autistic parents?”
At age 6, when the kid had no friends, instead of sharing the meltdowns on social platforms, help them acquire more skills as they get older. You will have no idea of what is yet to come. Your kid may be a star one day. Try to meet real people, in real life — not just online.